One family who understands this better than most are the Shucks from Borehamwood, who have shared their story to launch Camp Simcha’s upcoming “Fighting Illness with Love” campaign on March 2-3.
The family’s youngest son, Zack, was just six months old when he was diagnosed with a brain tumour. After a ten-hour operation to remove the tumour, he began 18 months of chemotherapy.
Camp Simcha has been supporting Zack’s family since his surgery – providing practical help such as hospital transport and crisis meals, as well as family support, therapeutic art sessions, residential retreats and outings.
Recalling the terrifying day he had surgery, Zack’s mum Louise, says: “I remember they told my husband and I to say goodbye to him. They said, ‘We don’t know if he’s going to come out of this or not.’
“Camp Simcha came into our lives on that same day. Someone in my family called them, and they just turned up with loads of treats and love and a big box of everything we might need at hospital. The connection blossomed from there, really helping us get through those first weeks, sending in food and helping my kids with fun outings and activities for them to do at home with my parents, while we were at the hospital.
“We met our family liaison officer shortly after and she came in with this massive smile on her face and gave me a big hug. I just knew that bond was going to be forever. My children are really, really shy but she made it so easy for them to love her.”
Zack came through the surgery well but, three months later, scans showed the tumour had returned, so he started a weekly course of chemotherapy.
“It takes a toll on my other children, as well as Zack, who is stuck in a hospital room for four days a week sometimes. My daughter cries a lot; she asks: ‘Where are you going, Mummy?’ Or ‘Please come back, Mummy’ because on the day Zack got diagnosed, I dropped the children at school and then didn’t see them for two weeks.”
Camp Simcha arranged therapeutic art sessions for Jake to express his feelings and also a volunteer Big Sister, Ariella. “Ariella has just changed their lives for the better. She takes them out for pizza, bike rides, and just comes over and does lots of fun things. They actually talk to her about things that they don’t talk to me about.
“Jake has been doing art with Michelle once a week, and it’s really good for him to have one-to-one, as he doesn’t talk about his feelings. She’s helping him more than she knows.
“I don’t think we would have got through this hard time that we all are going through without Camp Simcha in our lives. They have really helped us grow as a family and supported us in every way that we have needed. They have loved us. They have loved my children. They are like a best friend to me.”
The Shucks are among 1,700 family members supported by Camp Simcha annually, providing 25 bespoke support services for families coping with over 50 serious, life-threatening, life-changing and chronic paediatric conditions.
If you or a family you know could benefit from Camp Simcha’s free and confidential support, get in touch via email: office@campsimcha.org.uk or call 020 8202 9297. campsimcha.org.uk.
Registered charity 1180646
Camp Simcha “Big Sister” Ariella organises outings and other fun activities for Zack’s siblings and they can talk to her about their worries.[Missing Credit]