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Picnics bring sarcoma into the open

Sarcoma is a cancer of the bone or soft tissue. Early diagnosis can improve survival dramatically but to achieve this, we need to spread awareness.

June 29, 2017 10:27
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2 min read

When Karen Delin was diagnosed with sarcoma in 2006, her doctor told her not to Google it, because the results would be too scary. But he knew she would do it anyway.

Sarcoma is a cancer of the bone or soft tissue. A key symptom is a lump that increases in size, often rapidly. Because it can affect any part of the body, inside or out, it is one of the hardest cancers to diagnose. But identifying it early — when it is no bigger than a golf ball — can improve survival by 20 per cent. Often, though, sarcoma is not diagnosed until it is the size of a can of beans and after a patient has visited the GP as many as eight times.

“If you’re not happy, don’t just accept a diagnosis or a treatment,” says Delin. “Take that step forward; say: ‘please send me for a second opinion’.”

It was months before Delin could find a reliable source of sarcoma information online.