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Are you suffering from Inflammatory Bowel Disease? Support is out there

Help’s at hand for those living with the debilitating symptoms of IBD; and a word of warning about ‘miracle’ diet aids

November 28, 2024 14:15
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Sharing experience: Matty Fisher, 20, has more than 20,000 followers on Instagram where he posts @thekidwithabag
5 min read

Dealing with unpredictable and debilitating bouts of diarrhoea, fatigue and painful cramps just at the very moment when you want to be partying and setting off on adventures is a huge challenge.

Crohn’s disease and colitis, which come under the catch-all term Inflammatory Bowel Disease (IBD) can make social life into an obstacle course and at the very least double the possible awkwardness of first dates.

Hayden Cohen, 38, from Leeds wasn’t diagnosed with IBD until he was his thirties, but since his teens has suffered from  persistent “tummy problems” involving frequent and prolonged bathroom visits. “Before university I did American summer camp, and after you put the campers to bed, a few people were going out,” he recalls. “I disappeared for an hour, and they didn’t know where I was. That’s happened quite a lot socially, and it has been embarrassing at times.”

Matty Fisher Photo : Shahar Azran[Missing Credit]

Matty Fisher, who was diagnosed with Crohn’s aged 13, has tried not to let it affect his life. Now in the fourth year of a film, photography and media degree at Leeds University, he says initially he was reluctant to tell anybody because “it was very difficult to come to terms with, and then to have those conversations with people was just a lot to get my head around”. Alongside taking regular medication, Matty has to watch what he eats very carefully. In extreme cases the lifelong condition, which often starts before the age of 30, can result in patients having to live with a temporary or permanent stoma. Although IBD causes ulcers and inflammation in the gut, symptoms can affect many other parts of the body. Recent scientific advances do offer hope to sufferers of IBD, which is proportionately more likely to affect people of Ashkenazi Jewish heritage. A team at the Francis Crick Institute and University College Hospital has discovered a weak spot in human DNA that is present in 95 per cent of people with the disease. Team leader Dr James Lee says that this section of the genetic code helps to regulate inflammation, and some people have a version that makes their body overreact.

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