Knowledge is power. This is true in so many different circumstances, not least over the serious issue of Jewish genetic disorders. If young people are educated about the risks, they have the power not only to be tested but to inspire and encourage other people to as well.
I attend a Jewish school, am an active member of my synagogue and spent three weeks of my summer in Israel with a youth movement. Yet I have not been told to be screened for a genetic disorder and I do not feel I know enough about what they even are.
I spoke to a teacher about my school's plans for tackling and teaching this very topical - and arguably controversial - issue. I learned that at JCoSS, the emphasis is very much on education and raising awareness of Jewish Genetic Disorders. It is an integral part of the PSHCE curriculum, and is taught to students throughout the school. Screening is not offered in the school, although JCoSS will fully support a student who chooses to be screened, for example advising on where to go for this.
My generation is the future and it is imperative there is sufficient publicity on this issue.
Knowledge breeds awareness, awareness breeds understanding and understanding breeds action. This message needs to be shared in Jewish schools and youth movements and I worry this is not being done to an adequate extent.
